Publications
- Alexis Walker, Vence L. Bonham, Angie Boyce, Ellen Wright Clayton, Debra Garcia, Stephanie Johnson, Oliver Laeyendecker, Michelle Lewis, Joseph B. Margolick, Debra Mathews, Michael J. Parker, Paul Spicer, Chloe L. Thio, Gail Geller, Jeffrey Kahn, Ethical issues in genetics and infectious diseases research: An interdisciplinary expert review, Ethics, Medicine and Public Health, Volume 18, 2021. https://doi.org/10.1016/j.jemep.2021.100684.
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Sandra Soo-Jin Lee (2021) Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics, The American Journal of Bioethics,21:4, W1-W3, DOI: 10.1080/15265161.2021.1905102
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Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien (2021) An Open Dialogue on Health Disparities and Structural Racism: Response to Open Peer Commentaries, The American Journal of Bioethics, DOI: 10.1080/15265161.2021.1895365
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Gal, Dana B. MD; Deuitch, Natalie MS, CGC; Lee, Sandra Soo Jin PhD; Simon, Rosalie Tang NP; Char, Danton S. MD. Parental Attitudes Toward Clinical Genomic Sequencing in Children With Critical Cardiac Disease. Pediatric Critical Care Medicine Online First, Feb 12, 2021.Doi: 10.1097/PCC.0000000000002669
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Maya Sabatello, Beverly J. Insel, Bruce G. Link, Jo C. Phelan and Paul S. Appelbaum. The Psychiatric Genetic Data of Children in Proceedings to Terminate Parental Rights. Journal of the American Academy of Psychiatry and the Law Online February 2021, JAAPL.200066-20.
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Zhou, A., Sabatello, M., Eyal, G., Lee, S.S-J., et al. Is precision medicine relevant in the age of COVID-19?. Genet Med (2021). doi.org/10.1038/s41436-020-01088-4
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Kraft, S.A., McMullen, C., Lindberg, N.M. ... Lee, S.S-J. et al. Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol’s evolution. Genet Med 22, 1094–1101 (2020). doi.org/10.1038/s41436-020-0763-z
- Sabatello M, Chen Y, Herrera C F, Brockhoff E, Austin J, Appelbaum P S: Teenagers and Precision Psychiatry: A Window of Opportunity. Public Health Genomics 2021. doi: 10.1159/000512475
- Sandra Soo-Jin Lee (2020) Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine. The American Journal of Bioethics. DOI:10.1080/15265161.2020.1851813
- Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien (2020) Structural Racism in the COVID-19 Pandemic: Moving Forward. The American Journal of Bioethics, DOI: 10.1080/15265161.2020.1851808
- Lee, Sandra Soo-Jin, Stephanie M. Fullerton, Aliya Saperstein, Janet Shim. (2019) Ethics of Inclusion: Cultivating Trust in Precision Medicine Research. Science. 364(6444): 941-42. DOI: 10.1126/science.aaw8299
- Lee, Sandra Soo-Jin, Mildred K. Cho, Kraft, Stephanie A, Nina Varsava, Katherine Gillespie, Kelly E. Ormond, Benjamin S. Wilfond, David Magnus. (2018) “I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research. Genetics in Medicine. PMID: 29887604
- Kraft, Stephanie A, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond, Sandra Soo-Jin Lee. (2018) Beyond Consent: Building Trusting Relationships with Diverse Populations in Precision Medicine Research. American Journal of Bioethics. 18:4, 3-20, DOI: 10.1080/15265161.2018.1431322
- Char, D. S., Lee, Sandra Soo-Jin., Magnus, D., Cho, M. (2018). Anticipating uncertainty and irrevocable decisions: provider perspectives on implementing whole-genome sequencing in critically-ill children with heart disease. Genetics in Medicine doi:10.1038/gim.2018.25
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