Publications

Dolan, Deanne Dunbar, Sandra Soo-Jin Lee, and Mildred K. Cho. Three decades of ethical, legal, and social implications research: Looking back to chart a path forward. Cell Genomics (2022): 100150.\

Shim, Janet K., Mike Bentz, Emily Vasquez, Melanie Jeske, Aliya Saperstein, Stephanie M. Fullerton, Nicole Foti, Caitlin E. McMahon, and Sandra Soo-Jin Lee. (2022) Strategies of Inclusion: The Tradeoffs of Pursuing “Baked in” Diversity Through Place-Based Recruitment. Social Science & Medicine.

Maya Sabatello,  Wrongful Birth: AI-Tools for Moral Decisions in Clinical Care in the Absence of Disability Ethics, The American Journal of Bioethics, 22:7, 43-46, July 2022

Oliver J Bear Don’t Walk, IV, Harry Reyes Nieva, Sandra Soo-Jin Lee, Noémie Elhadad, A scoping review of ethics considerations in clinical natural language processing, JAMIA Open, Volume 5, Issue 2, July 2022

Sandra Soo-Jin Lee, Paul Appelbaum, Wendy K. Chung. Challenges and Potential Solutions to Health Disparities in Genomic Medicine. Cell, Volume 185, Issue 12, June 2022.

Lewis, A... Sandra Soo-Jin Lee, et al, Getting genetic ancestry right for science and society. Science, 376 (6590), April 2022. 

Alexis Walker, Diversity, Profit, Control: An Empirical Study of Industry Employees’ Views on Ethics in Private Sector Genomics. AJOB Empirical Bioethics, April 2022. 

Garofalo, D., Rosenblum, H., Zhang, Y., Chen, Y., Appelbaum, P., Sabatello, M., Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals. Genetics in Medicine (2021). https://doi.org/10.1016/j.gim.2021.11.015

Kauffman, Tia L...Sandra Soo-Jin Lee...et al. "Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol." Journal of Personalized Medicine 11.11 (2021): 1194. 
https://www.mdpi.com/2075-4426/11/11/1194

Magavern, Emma F., Deepti Gurdasani, Fu L. Ng, and Sandra Soo‐Jin Lee. "Health equality, race and pharmacogenomics." British Journal of Clinical Pharmacology (2021). https://doi.org/10.1111/bcp.14983

Tichenor, M., Winters, J., Storeng, K.T., Walker, A., et al. Interrogating the World Bank’s role in global health knowledge production, governance, and finance. Global Health 17, 110 (2021). https://doi.org/10.1186/s12992-021-00761-w

Daphne O. Martschenko, Lucas J. Matthews, Maya Sabatello. Why should we care about social and behavioral genomics? Bioethics.net (September 23, 2021)

Vaimberg E, Demers L, Ford E, Sabatello M, Stevens B, Dasgupta S (2021) Project Inclusive Genetics: Exploring the impact of patient-centered counseling training on physical disability bias in the prenatal setting. PLoS ONE 16(8): e0255722. https://doi.org/10.1371/journal.pone.0255722

Maya Sabatello, Audrey Chao, Beverly J Insel, Thomas Corbeil, Bruce G Link, Paul S Appelbaum, Psychiatric genetic essentialism and stigma in child custody proceedings: public views, Journal of Law and the Biosciences, Volume 8, Issue 2, July-December 2021, lsab026, https://doi.org/10.1093/jlb/lsab026

Alexis Walker, Vence L. Bonham, Angie Boyce, Ellen Wright Clayton, Debra Garcia, Stephanie Johnson, Oliver Laeyendecker, Michelle Lewis, Joseph B. Margolick, Debra Mathews, Michael J. Parker, Paul Spicer, Chloe L. Thio, Gail Geller, Jeffrey Kahn, Ethical issues in genetics and infectious diseases research: An interdisciplinary expert review, Ethics, Medicine and Public Health, Volume 18, 2021. https://doi.org/10.1016/j.jemep.2021.100684

Sandra Soo-Jin Lee (2021) Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics, The American Journal of Bioethics,21:4, W1-W3, DOI: 10.1080/15265161.2021.1905102

Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien (2021) An Open Dialogue on Health Disparities and Structural Racism: Response to Open Peer Commentaries, The American Journal of Bioethics, DOI: 10.1080/15265161.2021.1895365

Gal, Dana B. MD; Deuitch, Natalie MS, CGC; Lee, Sandra Soo Jin PhD; Simon, Rosalie Tang NP; Char, Danton S. MD. Parental Attitudes Toward Clinical Genomic Sequencing in Children With Critical Cardiac Disease. Pediatric Critical Care Medicine Online First,  Feb 12, 2021.Doi: 10.1097/PCC.0000000000002669

Maya Sabatello, Beverly J. Insel, Bruce G. Link, Jo C. Phelan and Paul S. Appelbaum. The Psychiatric Genetic Data of Children in Proceedings to Terminate Parental Rights.  Journal of the American Academy of Psychiatry and the Law Online February 2021,  JAAPL.200066-20.

Zhou, A., Sabatello, M., Eyal, G., Lee, S.S-J., et al. Is precision medicine relevant in the age of COVID-19?. Genet Med (2021). doi.org/10.1038/s41436-020-01088-4

Kraft, S.A., McMullen, C., Lindberg, N.M. ... Lee, S.S-J. et al.  Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol’s evolution.   Genet Med 22, 1094–1101 (2020). doi.org/10.1038/s41436-020-0763-z 

Sabatello M, Chen Y, Herrera C F, Brockhoff E, Austin J, Appelbaum P S: Teenagers and Precision Psychiatry: A Window of Opportunity. Public Health Genomics 2021. doi: 10.1159/000512475

Sandra Soo-Jin Lee (2020) Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine. The American Journal of Bioethics. DOI:10.1080/15265161.2020.1851813

Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien (2020) Structural Racism in the COVID-19 Pandemic: Moving Forward. The American Journal of Bioethics, DOI: 10.1080/15265161.2020.1851808

Lee, Sandra Soo-Jin, Stephanie M. Fullerton, Aliya Saperstein, Janet Shim. (2019) Ethics of Inclusion: Cultivating Trust in Precision Medicine Research. Science. 364(6444): 941-42. DOI: 10.1126/science.aaw8299

Lee, Sandra Soo-Jin, Mildred K. Cho, Kraft, Stephanie A, Nina Varsava, Katherine Gillespie, Kelly E. Ormond, Benjamin S. Wilfond, David Magnus. (2018) “I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research. Genetics in Medicine. PMID: 29887604

Kraft, Stephanie A, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond, Sandra Soo-Jin Lee. (2018) Beyond Consent: Building Trusting Relationships with Diverse Populations in Precision Medicine Research. American Journal of Bioethics. 18:4, 3-20, DOI: 10.1080/15265161.2018.1431322

Char, D. S., Lee, Sandra Soo-Jin., Magnus, D., Cho, M. (2018). Anticipating uncertainty and irrevocable decisions: provider perspectives on implementing whole-genome sequencing in critically-ill children with heart disease. Genetics in Medicine doi:10.1038/gim.2018.25