Understanding the Expectations and Needs of Diverse Communities For Navigating Research Results
NIH Award
Dr. Sandra Soo-jin Lee recently received a supplement award from NIH: “Understanding the Expectations and Needs of Diverse Communities For Navigating Research Results” (3R01HG010330-04S1).
The study is focused on understanding the preferences and expectations of underrepresented communities for receiving genetic results in a research setting and navigating additional information and services in the clinical setting are critical to building and maintaining research relationships and engendering trust, particularly with groups who have historically not participated in biomedical research. This study leverages a unique opportunity to investigate the preferences of African American and Hispanic/Latino communities, including the uninsured, who are being recruited into precision medicine research initiatives for different types of genetic test results and their expectations and needs for information and resources to allow for informed, validated follow-up of research results and clinical care.