ELSIhub Collections from the Center for ELSI Resources and Analysis

Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening is curated by Julie Cakici, RN, PhD Candidate, The Herbert Wertheim School of Public Health and Human Longevity Science, University of California, San Diego School of Public Health & San Diego State University; Julia Brown, PhD, Postdoctoral Scholar, Bioethics Program, University of California, San Francisco; and Aaron Goldenberg, PhD, Professor, School of Medicine, Case Western Reserve University

Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research is curated by Lisa S. Parker, PhD, Dickie, McCamey & Chilcote Professor of Bioethics, Director, Center for Bioethics & Health Law, and Director of the Research, Ethics and Society Initiative, University of Pittsburgh

Addressing Algorithmic Unfairness in Healthcare is curated by Charlotte A. Tschider, JD, MA, Assistant Professor, Loyola University Chicago School of Law & The Beazley Institute of Health Law and Policy

Abortion and the Genetic Counselor: The Impact of Restrictive Legislation on Genetic Counseling Practice is curated by Laura Hercher, MA, MS, CGC, Director of Research, Sarah Lawrence College Joan H. Marks Graduate Program in Human Genetics and Jordan Brown, MA, MS, LGC, Assistant Professor, Division of Human Genetics and Division of Bioethics, Assistant Director, Genetic Counseling Graduate Program, Ohio State University College of Medicine

Ethical and Legal Challenges Posed by the Implementation of AI Applications in the Healthcare Setting is curated by Sara Gerke, Dipl-Jur Univ, MA, Assistant Professor of Law, Penn State Dickinson Law

Neurobehavioral Genetic Testing in Children: How Much Should We Know? is curated by Claire Sathe, MD, JD, Fellow, Division of Hematology/Oncology, Department of Medicine, Columbia University Irving Medical Center, and Paul S. Appelbaum, MD, Dollard Professor of Psychiatry, Medicine & Law, Vagelos College of Physicians & Surgeons, Columbia University

Who Are We Now? Genetics, Genomics, and the Question of the Human is curated by Priscilla Wald, PhD, R. Florence Brinkley Distinguished Professor of English, Trinity College of Arts & Sciences, Duke University and Elizabeth Apple, MDiv, Graduate Student, Department of English, Trinity College of Arts & Sciences, Duke University

How Literature and Film Shape and Reflect Public Attitudes toward Genetics is curated by Jay Clayton, PhD, Director, Curb Center for Art, Enterprise, and Public Policy and William R. Kenan, Jr. Professor of English, Vanderbilt University

Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies is curated by Ainsley J. Newson BSc(Hons), LLB(Hons), PhD, Professor of Bioethics, Sydney Health Ethics, Faculty of Medicine and Health, University of Sydney.

Expanded Carrier Screening (ECS): Clinical and Ethical Considerations for Genetic Counseling is curated by Melanie Myers, PhD, MS, Professor, Division of Human Genetics, Department of Pediatrics, and Co-Director of Genetic Counseling Graduate Program, University of Cincinnati and Cincinnati Children's Hospital Medical Center, and Emily Wakefield, MS, CGC, LGC, Licensed and Certified Genetic Counselor, Cincinnati Children's Hospital.

Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa is curated by Joseph Ali, JD, Assistant Professor, Johns Hopkins Berman Institute of Bioethics and Bloomberg School of Public Health, USA and Erisa Sabakaki Mwaka, MMed, MSoc, PhD, Associate Professor, College of Health Sciences, Makerere University, Uganda.

Technologies to Operationalize Indigenous Data Sovereignty is curated by Māui Hudson, BHSc, AIT, MHSc, AUT, Associate Professor and Director, Te Kotahi Research Institute, University of Waikato, and Stephanie Russo Carroll, DrPH, MPH, Assistant Professor, Public Health, and Associate Director, Native Nations Institute, University of Arizona.

Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI) is curated by Sara H. Katsanis, MS, Research Assistant Professor, Ann & Robert H. Lurie Children’s Hospital of Chicago, Feinberg School of Medicine, Northwestern University and Diana Madden, MA, Behavioral Research Coordinator III, Ann & Robert H. Lurie Children’s Hospital of Chicago.

Current Legal Challenges to Abortion: Implications for Prenatal Genetics is curated by Ellen Wright Clayton, MD, JD, Craig-Weaver Professor of Pediatrics and Professor of Health Policy, Vanderbilt University Medical Center; Professor of Law, Vanderbilt University School of Law and Marsha Michie, PhD, Assistant Professor of Bioethics, Case Western Reserve University School of Medicine.

Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research is curated by Keolu Fox, PhD, Assistant Professor, University of California, San Diego, Co-founder, Indigenous Futures Institute (IFI), Co-founder Native BioData Consortium (NBDC)

Realizing the Self-Determination Goals of Indigenous People in Genetics Research is curated by Vanessa Y. Hiratsuka, PhD, MPH, Co-Director of Research and Evaluation, Assistant Professor of Clinical and Translational Research, Center for Human Development, University of Alaska Anchorage

Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond is curated by Gretchen A. Case, PhD, MA, Associate Professor & Chief, Program in Medical Ethics and Humanities, Division of General Internal Medicine, Department of Internal Medicine, University of Utah School of Medicine, and Darian Mikelle Hackney, JD Candidate, Program in Medical Ethics and Humanities Fellow, University of Utah S.J. Quinney College of Law

Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease is curated by Debra JH Matthews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director for Science Programs at the Berman Institute of Bioethics and Associate Professor of Genetic Medicine at Johns Hopkins University, and Sheetal Jose, PhD Student, PhD Student in Bioethics and Health Policy at the Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Johns Hopkins Berman Institute of Bioethics and the Bloomberg School of Public Health

Race, Genetics, and Genetics Education is an ELSIhub Collection curated by Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning and Daphne O. Martschenko, PhD, Postdoctoral Research Fellow, Stanford Center for Biomedical Ethics