ELSI Virtual Forum Video Recordings

 

MONDAY June 15, 2020  


Welcome and Opening Remarks

Sandra Soo-Jin Lee, PhD and Mildred Cho, PhD

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Opening Keynote: Integrating ELSI and Genomics: Past, Present, and Future

Speakers: Eric Juengst, PhD; Pilar Ossario, JD, PhD; Eric Green, MD, PhD; Moderator: Amy McGuire, JD, PhD

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Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance

Speakers: Natalie Lira, PhD; Nicole Novak, PhD, MSc; Elyse Thulin, MS; Alexandra Minna Stern, PhD

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Polygenic Risk Scores & Behavioral Traits: Interrogating the Science & Ethics

 Speakers: Dalton Conley, PhD; Steve Hyman, MD; Michelle Meyer, JD, PhD; Moderator: Paul Appelbaum, MD

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 New Models for Ethical AI in Precision Medicine: Empirical and Normative ELSI Inquiry

 Speakers: David Magnus, PhD; Pamela Sankar, PhD; Ariadne Nichol, BA; Moderator: Mildred Cho, PhD

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TUESDAY, JUNE 16 


Welcome and Opening Remarks

Sandra Soo-Jin Lee, PhD

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CRISPR and Human Identity: Governing Germline Gene Editing 

 Speakers: Rosemarie Garland-Thomson, PhD; George Daley, MD, PhD; Bartha Knoppers, JD, PhD; Moderator: Josephine Johnston, LLB, MBHL

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Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research 

 Speakers: Alecia M. Fair, DrPH; Karriem Watson, DHSc, MS, MPH; Elizabeth Cohn, RN, PhD; Consuelo Wilkins, MD, MSCI

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Ethical Frameworks for Research Collaboration with Indigenous Communities

Speakers: Chief Lynn Malerba, DNP, MPA; Nanibaa’ Garrison, PhD; Katrina Claw, PhD; Moderator: Vanessa Hiratsuka, PhD

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To Catch a Killer: Law Enforcement Uses of DNA Databases 

Speakers:  James Hazel, JD, PhD; Jennifer Wagner, JD, PhD; Christi Guerrini, JD, MPH; Amy McGuire, JD, PhD; Moderator: Amy McGuire, JD, PhD

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Closing Remarks

Sandra Soo-Jin Lee, PhD and Mildred Cho, PhD

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